Joining Hands
Around the World
for NMO Patients
Stronger together
In an effort to join hands around the world, the organizations shown here have a strong, heartfelt commitment to building bridges where there were none. These organizations are committed advocates for patients who walk the path of NMO on a daily basis. We are one global voice and the world is our platform. Please join us in supporting our international patient family and help us raise awareness for this rare, debilitating disease known as NMO.
You can learn more about each organization that advocates for NMO patients by selecting any/all of the site links below. Thank you for joining us in our work to support our global patient community.
Please note that this collection of websites has been created solely for the purpose of sharing contact information for NMOSD patient advocacy support organizations around the world. The content of these sites has not been reviewed by the site administrator, and the site administrator does not intend by listing any such organization to endorse or recommend its use or the accuracy of any information shown on its website.
Patient Advocacy
The Guthy Jackson Charitable Foundation
United States of America
For more information, contact:
Lisa McDaniel
Siegel Rare Neuroimmune Association (SRNA)
United States of America
For more information, contact:
Gabrielle deFiebre
The Sumaira Foundation for NMO
United States of America
For more information, contact:
Sumaira Ahmed
Your Patient Advocacy Organization Here
Please send the title of your organization, country, logo, url, and contact email address to: lmcdaniel@thegjcf.org
Access to Therapeutics
National Organization for Rare Disorders (NORD)
About NMO
Neuromyelitis optica (NMO) is a central nervous system autoimmune disorder that primarily affects the eye nerves (optic neuritis) and the spinal cord (myelitis). NMO is also known as neuromyelitis optica spectrum disorder (NMOSD) or Devic's disease. NMO is a rare-occurring, demyelinating disease that impacts patients globally.