Multiracial Hands Around the Earth Globe

Joining Hands
Around the World
for NMO Patients

Stronger together

In an effort to join hands around the world, the organizations shown here have a strong, heartfelt commitment to building bridges where there were none. These organizations are committed advocates for patients who walk the path of NMO on a daily basis. We are one global voice and the world is our platform. Please join us in supporting our international patient family and help us raise awareness for this rare, debilitating disease known as NMO.

You can learn more about each organization that advocates for NMO patients by selecting any/all of the site links below. Thank you for joining us in our work to support our global patient community.

 

Please note that this collection of websites has been created solely for the purpose of sharing contact information for NMOSD patient advocacy support organizations around the world.  The content of these sites has not been reviewed by the site administrator, and the site administrator does not intend by listing any such organization to endorse or recommend its use or the accuracy of any information shown on its website.

Patient Advocacy

Guthy-Jackson Charitable Foundation

The Guthy Jackson Charitable Foundation

United States of America
For more information, contact:
Lisa McDaniel

Siegel Rare Neuroimmune Association (SRNA)

Siegel Rare Neuroimmune Association (SRNA)

United States of America
For more information, contact:
Gabrielle deFiebre

Sumaira Foundation for NMO

The Sumaira Foundation for NMO

United States of America
For more information, contact:
Sumaira Ahmed

NMO之家

NMO病友会

China
For more info contact:
Jenny Zhang

Logotipo NMO_transparente

NMO Brasil

Brazil
For more info contact:
Daniele Americano

NMO rare mais ensemble

NMO France

France
For more info contact:
Souad Mazari

Your Patient Advocacy Organization Here

Please send the title of your organization, country, logo, url, and contact email address to: lmcdaniel@thegjcf.org

Access to Therapeutics

The Assistance Fund

The Assistance Fund (TAF)

United States of America

For more info contact:

Stephanie Marshall

NORD National Organization for Rare Disorders

National Organization for Rare Disorders (NORD)

United States of America

For more info visit:

About NMO

Neuromyelitis optica (NMO) is a central nervous system autoimmune disorder that primarily affects the eye nerves (optic neuritis) and the spinal cord (myelitis). NMO is also known as neuromyelitis optica spectrum disorder (NMOSD) or Devic’s disease. NMO is a rare-occurring, demyelinating disease that impacts patients globally.